It’s getting to be the end of the year, and I have yet to write an update this season. It’s been a hard season, well couple of them. I would say my life really took a turn in May after my birthday. As we all know my spine problems worsened to the point of a… Continue reading Life is hard
Lupus, Diabetes, Spine..
It’s Saturday August 28th. My “sick-anniversary” is September 20th and this is always a really weird time of the year for me. I avoid most the memories on my phone because the thought of my old life still makes me sick. I can still put myself right back into my life in 2018. And to… Continue reading Lupus, Diabetes, Spine..
Spoonie Spotlight on Jordyn
Name: Jordyn Age: 28 Location: Buffalo, NY Diagnosis or suspected diagnosis: Systemic Lupus and Lupus Nephritis How long did it take you to get a diagnosis or how long have you been waiting for one: Luckily it was a quick diagnosis for me. I was 18 years old and woke up feeling like a 90 year old. Within… Continue reading Spoonie Spotlight on Jordyn
What is a Spoonie? Intro to Spoonie Spotlight!
A Spoonie can refer to any individual who suffers from a chronic illness. Often times these illnesses are invisible and therefore extremely hard to understand. The spoon theory is an idea that chronically ill people have limited energy to perform everyday tasks, and the “spoon” is used as a representation of the unit of energy.… Continue reading What is a Spoonie? Intro to Spoonie Spotlight!
This Is Our Everyday: How Covid Has Changed Life For The Chronically Ill
I tell people all the time that my life was probably the least affected by COVID compared to others in my world. I know people who have lost jobs, been forced to move, lost family members or friends, are frontline workers. But me? I’ve been homebound with my parents for the last 2.5 years due… Continue reading This Is Our Everyday: How Covid Has Changed Life For The Chronically Ill