It’s getting to be the end of the year, and I have yet to write an update this season. It’s been a hard season, well couple of them. I would say my life really took a turn in May after my birthday. As we all know my spine problems worsened to the point of a… Continue reading Life is hard
Tag: rare disease
Lupus, Diabetes, Spine..
It’s Saturday August 28th. My “sick-anniversary” is September 20th and this is always a really weird time of the year for me. I avoid most the memories on my phone because the thought of my old life still makes me sick. I can still put myself right back into my life in 2018. And to… Continue reading Lupus, Diabetes, Spine..
Let’s Talk About My Mama!
It’s absolutely crazy for me to think about the fact that my mom is sick too. You guys see 5% of all she does for me & I know you realize how much of a superhero she is. But my mom is an invisible warrior with autoimmune disease as well. She has 3 autoimmune diseases:… Continue reading Let’s Talk About My Mama!
Lil update- The good, the bad, and the in between!
I haven’t written in awhile. I got the diagnosis of Lupus March 4th and since then have been fighting with insurance to approve the immunosuppressant my rheumatologist wanted me on (Abatacept/Orencia). My doctor went through all the appeals he could and then it was turned back over to us to file a grievance through the… Continue reading Lil update- The good, the bad, and the in between!
Diagnosed Pt. 2
We spent 5 weeks at the Mayo Clinic. We were blessed to be able to stay with family because we went over the course of the entire summer (2020). We started with rheumatology where they ran another whole blood panel for autoimmune diseases and other disorders. In the meantime of those results, she sent me… Continue reading Diagnosed Pt. 2
Diagnosed Pt. 1
If you know me, you know I jinx myself 24/7. So, it would only be appropriate that right after I publish a blog called, “The Undiagnosed” I would GET DIAGNOSED shortly after. Yes... you read that right! I GOT DIAGNOSED! I want to say it a million times every time I’m talking about it. If… Continue reading Diagnosed Pt. 1
My name is Samantha & I live in Orange County, California. I have been chronically ill for the past 4 years and my passion is to talk about my experiences and journey in order to help other people with theirs. I have 2 genetic mutations, 5 autoimmune diseases, and a plethora of other health problems… Continue reading My Story
January 2021 Wrap Up
It was a very busy and productive 2 weeks. I had my 6 month brain MRI check up, as well as a bladder and kidney ultrasound. Then I had an appointment with my Geneticist at Mayo to discuss my Whole Exome Sequencing results. Whole Exome Sequencing (WES) is one of the most extensive forms of… Continue reading January 2021 Wrap Up
What To Pack In Your Hospital Bag
Anyone who has done the chronic illness thing for awhile can attest that having a hospital “plan” is key. There are times you go into the ER and you don’t know if you will be staying for just that day, overnight, weeks, or longer. Covid has changed the healthcare system a lot because they don’t… Continue reading What To Pack In Your Hospital Bag