“So tell me, what’s been going on?”
It’s getting to be the end of the year, and I have yet to write an update this season. It’s been a hard season, well couple of them. I would say my life really took a turn in May after my birthday. As we all know my spine problems worsened to the point of a… Continue reading Life is hard
It’s Saturday August 28th. My “sick-anniversary” is September 20th and this is always a really weird time of the year for me. I avoid most the memories on my phone because the thought of my old life still makes me sick. I can still put myself right back into my life in 2018. And to… Continue reading Lupus, Diabetes, Spine..
Name: Jordyn Age: 28 Location: Buffalo, NY Diagnosis or suspected diagnosis: Systemic Lupus and Lupus Nephritis How long did it take you to get a diagnosis or how long have you been waiting for one: Luckily it was a quick diagnosis for me. I was 18 years old and woke up feeling like a 90 year old. Within… Continue reading Spoonie Spotlight on Jordyn
I haven’t written in awhile. I got the diagnosis of Lupus March 4th and since then have been fighting with insurance to approve the immunosuppressant my rheumatologist wanted me on (Abatacept/Orencia). My doctor went through all the appeals he could and then it was turned back over to us to file a grievance through the… Continue reading Lil update- The good, the bad, and the in between!
We spent 5 weeks at the Mayo Clinic. We were blessed to be able to stay with family because we went over the course of the entire summer (2020). We started with rheumatology where they ran another whole blood panel for autoimmune diseases and other disorders. In the meantime of those results, she sent me… Continue reading Diagnosed Pt. 2
THE UNDIAGNOSED 