It’s Saturday August 28th. My “sick-anniversary” is September 20th and this is always a really weird time of the year for me. I avoid most the memories on my phone because the thought of my old life still makes me sick. I can still put myself right back into my life in 2018. And to… Continue reading Lupus, Diabetes, Spine..
Name: Jordyn Age: 28 Location: Buffalo, NY Diagnosis or suspected diagnosis: Systemic Lupus and Lupus Nephritis How long did it take you to get a diagnosis or how long have you been waiting for one: Luckily it was a quick diagnosis for me. I was 18 years old and woke up feeling like a 90 year old. Within… Continue reading Spoonie Spotlight on Jordyn
I haven’t written in awhile. I got the diagnosis of Lupus March 4th and since then have been fighting with insurance to approve the immunosuppressant my rheumatologist wanted me on (Abatacept/Orencia). My doctor went through all the appeals he could and then it was turned back over to us to file a grievance through the… Continue reading Lil update- The good, the bad, and the in between!
We spent 5 weeks at the Mayo Clinic. We were blessed to be able to stay with family because we went over the course of the entire summer (2020). We started with rheumatology where they ran another whole blood panel for autoimmune diseases and other disorders. In the meantime of those results, she sent me… Continue reading Diagnosed Pt. 2
If you know me, you know I jinx myself 24/7. So, it would only be appropriate that right after I publish a blog called, “The Undiagnosed” I would GET DIAGNOSED shortly after. Yes... you read that right! I GOT DIAGNOSED! I want to say it a million times every time I’m talking about it. If… Continue reading Diagnosed Pt. 1
... maybe a car accident?” The team of doctors are staring at my mom and I. I got a confused look and we both said no at the same time. Then they began to explain to us that my diaphragm was permanently paralyzed and I would need to be on the use of oxygen indefinitely.… Continue reading Have you ever been shot or stabbed before?