“So tell me, what’s been going on?”
Name: Jordyn Age: 28 Location: Buffalo, NY Diagnosis or suspected diagnosis: Systemic Lupus and Lupus Nephritis How long did it take you to get a diagnosis or how long have you been waiting for one: Luckily it was a quick diagnosis for me. I was 18 years old and woke up feeling like a 90 year old. Within… Continue reading Spoonie Spotlight on Jordyn
A Spoonie can refer to any individual who suffers from a chronic illness. Often times these illnesses are invisible and therefore extremely hard to understand. The spoon theory is an idea that chronically ill people have limited energy to perform everyday tasks, and the “spoon” is used as a representation of the unit of energy.… Continue reading What is a Spoonie? Intro to Spoonie Spotlight!
THE UNDIAGNOSED 